Muscular Dystrophy Quotes

If I found the cure for dystrophy tomorrow, I would do a telethon in four weeks for acute pain that in this country is a bigger problem than cancer, heart, sickle cell, anemia, name it. It is - it's hitting 70 million Americans.

People need to remember that to balance the federal budget off the backs of the poorest people in the country is simply unacceptable. You don't pull feeding tubes from people. You don't pull the wheelchair out from under the child with muscular dystrophy.

I started bettysbattle.org, which is a charity in honor of my mom, associated with the Muscular Dystrophy Association, a charity that is near and dear to my heart. We turned to them for resources and information. They were there for us every step of the way, from the day that Mom was diagnosed. I formed a charity in honor of my mom and them. I'm the national ALS ambassador for MDA. I do their telethon every year.

Every year, once a year, in Maryland, I go for a week and overnight camp with about 50 to 60 kids with muscular dystrophy, all ages, seven to 21. And it is really fun. I have some great friends there and wonderful counselors.

I was witness to a beautiful relationship between cricketer Anil Kumble and a boy suffering from muscular dystrophy. Moved, I wrote 'Spin' - a small film about a cricketer and a spastic boy. But I couldn't find backing.

Muscular dystrophy ... was never seen until Duchenne described it in the 1850s. By 1860, after his original description, many hundreds of cases had been recognised and described, so much so that Charcot said: 'How is it that a disease so common, so widespread, and so recognisable at a glance - a disease which has doubtless always existed - how is it that it is recognised only now? Why did we need M. Duchenne to open our eyes?'

My disease is a very rare form of muscular dystrophy, called disautonomic mitochondrial myopathy.

I can't really walk well. The muscles don't get the electronic signals from my brain, not that there's anything wrong with the muscles themselves. It's just my brain.

There's already a lot of active research going on using the Crispr technology to fix diseases like Duchenne muscular dystrophy or cystic fibrosis or Huntington's disease. They're all diseases that have known genetic causes, and we now have the technology that can repair those mutations to provide, we hope, patients with a normal life.

My cousin was diagnosed with muscular dystrophy, and it's just a really tragic disease, and as of yet there is no cure, so I feel I want to get it as much publicity to do it as I can.

The thing about motor neuron disease, once a muscle stops working, it doesn't start again.

If it came to a magic genie, I would ask him for two extra wishes. One would be that no one would have to live with the muscular dystrophy disease or any disease. And the second one would be world peace, that we just stop fighting, talk about things, and we could live in harmony once again, like God intended us to do.

Every time I kick a goal, I do the Joining Jack sign, which is two Js linked together for Jack's charity and for Duchenne muscular dystrophy.