With Alzheimer's patients, you have to be very careful what you say when you're looking at them over their bed. Because once in a while, they understand it.
My mother passed away of complications of dementia. As you get older, it really makes you realize how many people are touched by this disease.
One of the great changes wrought by the increased public awareness of Alzheimer's - and thank you, Nancy Reagan, you wonderful tough old dame, you - is that people in the early stages of the disease are now speaking out while they still have the capacity to do so.
Greater public recognition will also be critical in encouraging prevention and early intervention, and more generally in building public support to meet the challenges of dementia.
Dementia is often regarded as an embarrassing condition that should be hushed up and not spoken about. But I feel passionately that more needs to be done to raise awareness, which is why I became an ambassador for the Alzheimer's Society.
My mother was wonderfully out about her dementia. She would sort of - she would say to me, I came out to the window cleaner about having dementia. You know, I love the way that verb for coming out of the closet has now become so socially useful for all sorts of situations, like when you need to explain to the window cleaner that you don't know if you paid him or not.
We have to make it socially acceptable to talk about having risk of getting dementia. I think that is one of the ground zero struggles we are going to face in the coming decades.
Discussing new techniques for indicating who was likely to suffer from Alzheimer's Disease.
Those with dementia are still people and they still have stories and they still have character and they're all individuals and they're all unique. And they just need to be interacted with on a human level.
Americans whisper the word Alzheimer's because their government whispers the word Alzheimer's. And although a whisper is better than the silence that the Alzheimer's community has been facing for decades, it's still not enough. It needs to be yelled and screamed to the point that it finally gets the attention and the funding that it deserves and needs.
I think everyone knows someone who's battling with dementia or caring for a relative affected by it. I've been staggered by how commonplace it is.
Seven hundred thousand people who have dementia in this country are not heard. I'm fortunate; I can be heard. Regrettably, it's amazing how people listen if you stand up in public and give away $1 million for research into the disease, as I have done.
When thousands of patients rise up, refuse to be stigmatized, discuss their symptoms and participate in research, science benefits. A new test for Alzheimer’s could help to create that movement, but let’s not wait. Twenty-five percent to 50 percent of us will show signs of Alzheimer’s by the age of 85. When it comes to dementia, we all should consider ourselves vulnerable. No matter what genes you carry, your odds of developing cognitive problems increase as you age. In other words, welcome to the club: If you plan to live a long time, then you, too, belong to the high-risk group. Now what are you going to do about it?
I am committed to helping Alzheimer's Society in any way I can. My family and I rely on the help of organisations like Alzheimer's Society to help us understand the disease and guide us in the care of my grandmother. It's been a privilege to meet so many people with dementia.
People with Alzheimer's deserve to be seen, so that we can find a cure!