Cystic Fibrosis Quotes

My mother died of cystic fibrosis before I knew her. I was two years old, and I don't remember her. I do remember, though, when it was just my father and me, before he met the woman who would become the mother who raised me, before my younger sister, Gillian. It was just the two of us, and he was my whole world.

Personally, I had a close friend with cystic fibrosis. I won't ever forget how he handled himself. In the face of extreme challenges and very harrowing circumstances, he maintained a positive outlook and was just very dignified, even in his suffering.

My niece was born with cystic fibrosis 15 years ago, and she's incredibly healthy and an incredible competitive dancer, so I'm going to do some events for the Cystic Fibrosis Foundation.

When one teenager dying of cystic fibrosis asked me, 'Why am I different?' I answered, 'Tony, because it makes you beautiful.' He loved my answer because he knew full well how much he had done for the world and that he would be immortal through his love and the fund raising of those who knew him hoping to find a cure for cystic fibrosis.

My own area of expertise is the genetics of human disease. I was fortunate to be part of the team that found the genes for cystic fibrosis, and Huntington's disease and neurofibromatosis.

While there is no cure, cystic fibrosis is so close to being a livable disease. There is a lot of hope.

I am not prepared to explain to a sick child with cystic fibrosis, facing death and fighting for breath, the ethical grounds that hinder the science which could save him.

My natural mother passed away from cystic fibrosis when I was a toddler, so I feel a great deal of empathy for people who are struggling with disease.

Because I lost a daughter, eight years old, to cystic fibrosis, I think that anytime that I'm dealing with people who, like Andrea Yeager, are trying to help those sick children, I identify very much with them.

There's already a lot of active research going on using the Crispr technology to fix diseases like Duchenne muscular dystrophy or cystic fibrosis or Huntington's disease. They're all diseases that have known genetic causes, and we now have the technology that can repair those mutations to provide, we hope, patients with a normal life.

You can imagine what a dorm room environment is to a CF parent. It's like, oh my God. It's crazy.

I took care of young adults with cystic fibrosis when I was in my residency training and found this to be a disease that was desperately in need of some explanation.

To go to hospitals and see people fight and overcome cystic fibrosis or cancer or any number of illnesses is to see courage that is humbling. And athletes constantly need to be humbled.